This Sunday I am going to camp for a couple of days I will be doing a bunch of activities like going in the water, in a boat, bible reading and hanging out with friends, I will be doing some creative activities as well. I am looking forward to spending time with my friends and making new friends. I leave Sunday by 4 and come back on Wednesday in the afternoon. I am planning on having a good time with camp fires, singing and everything. I look forward to it every year.
This morning, was a very early start, 5 in the morning and had to be to Utica by 7 in the morning.I kicked off the Bike Run, I spoke around 7:15 ish. I encouraged and supported them as they left to ride their bikes for 63 miles. Why 63 miles you ask? People with Down Syndrome have an extra chromosome on the 21st, and a 3rd copy of that so you multiply the two for the miles they had to bike for. I had a good time speaking and it was a blast.
Wow does the time go so fast. I am almost getting ready for school again. In two weeks I am going to take a Sociology class. I am looking forward to the upcoming semester. I hope the teacher I am going to have is going to be as supportive as my other teacher from last semester. I hope that I can do as well as I did last time. Wish me luck everyone. It’s pretty cool taking classes at LeMoyne.
I went to the Special Olympics at CNS this year and Breanna Stewart was the keynote speaker like I have been in the past. I got to meet her and hang out with her. I like meeting new people and she is really cool, just recently we have been emailing each other and catching each other up our summers. She told me that she is going back to school soon and she said to let her know if I want to see her play basketball. She is on the Women’s UCONN Huskies team. How cool is that, I am definitely looking forward to seeing her play sometime.
This morning Senator Chuck Schumer was speaking about the ABLE act in Syracuse. It was held at ARC of Onondaga at 11 am. I was there as a Down Syndrome self advocate, NDSS ambassador, and also representing Gigi’s Playhouse.I stood up next to the Senator while he spoke about the ABLE act and how it will benefit my friends and I to keep money into our checking accounts, and not have to worry about exceeding certain amounts of money. I took my picture with the Senator and a couple of friends Laurie, Rob Taishoff, and Amy Allyn, took pictures with them as well. I had a interview with the Channel 9 news crew that went well and made the news this evening they actually followed me over to Gigi’s where I was working and filmed me there. I enjoyed seeing Senator Schumer, he feels confident the bill should be pass later this year. I hope so.
This morning was an early start to my day, by getting up at 4 am. I had a plane to catch at 5:30 and me and my Mom went to Washington DC. I am a self advocate so I went to the hearing of the ABLE act. We got there early so we took the Metro station and took two of those going there and two coming back. When we got to the Dirksen building my mom and I just hung out for a little bit. Then went up to the room with where the hearing was going to start. The hearing took about an hour or so, the room was filled almost to capcity. There were at least three self advocates who told their personal stories and their testimonies. The voting is not going to happen right away but I think the vote will be in September. I thought the speakers were good and well spoken. We had to wait in a line to get in the room. After the hearing was over me and my Mom hung out a little more and headed back to the airport and got lunch at Legal Seafood and it was pretty good. We caught the flight we wanted and got back home to Syracuse safe and sound. It was really interesting going through the process of the hearing. I hope to go back when they sign it into a law!
Tonight, I went to the baseball game with my parents, my Aunt and Uncle and Godmother, I sat with both of them. I met John Katko, he is running for Congress, he is so nice and personable. I went over introduced myself and talked to him. I wished him good luck in his run for Congress. At one point of the game they were throwing shirts and I got one from him, he motioned for me to move up toward him and then he tossed it to me. I put on the shirt and John came to me and I took a picture with him. That was so awesome. I hugged him wow! Tonight was an awesome night and not only did I meet him, I also met the manager of the stadium. Lottery was up on top selling tickets, I won a shirt from them and then I won money on lottery tickets, woo hoo. The Chief’s won the game and then they had the fireworks. It was so much fun.
The ABLE act is Acheving a Better Life Experience so people like me and my friends that are differently abled can have money in our accounts, and not lose our insurance or Social Security. Without that we remain at poverty level. There are pictures on facebook about passing this act. I wrote a letter to President Obama about the ABLE act. I wrote him last week and I would love to hear back from him. I am looking forward to hearing from the President. HELP US PASS THE ABLE ACT, contact your congressmen and women and Senators and urge them to vote for it!
Today is Sunday, wow did that time go by fast. We had to finish packing and get ready to come home. So after getting dressed we finished our packing and we went down to breakfast for the last time. After breakfast we went back up and brushed teeth and pulled our luggage out to the halls for the bus to come and pick us up. When we got in the bus it was a little bit until we got back. We got back about 11 something and said our good byes to friends. We then parted ways and went home. That was pretty much it, but it was a great weekend. now nap time!
Today was early for me and my friends. It was six in the morning. We had to move and get ready for breakfast after the coaches woke us up. We got dressed and did our medicines and brushed our teeth. We had to make sure we had everything with us. I think we did. After breakfast we took a bus to the track and field meet. The coaches had a meeting, then at 8 I had prelims for softball throw and did okay. I went back in the afternoon and got my ribbon I came 4th place. I had a running heat a little bit after the softball throw. That was also prelims. My time was 12.9 not to bad. We all went to lunch at Olympic Village and walked around there. I partook in the healthy athlete events when they were still up and running. In the afternoon I had my final running heat and my time was 12. 1 I think and came in 4th place. Central region came in 4th place for the relay. After we were done, back to the bus and headed back to the dorms at that time, It was time for dinner yay. Then after dinner we got to relax for a little while and shower. The shower felt great after being outside in the sun. After getting showered we had closing ceremonies and a victory dance. Stayed there and danced for awhile. When coach told us it was time to head back we got ready for bed and started packing up. We hung out in the hall for a bit and ate some snacks, because that was our last night being at Buffalo. Then went bed and it was close to midnight.