Busy September month

I started out a busy September with a couple of Presentations. I had a public speaking engagement early in the month in Oswego to future teachers, a small group but it went well. I have spoke to groups for Professor Dougherty before, it’s really nice that she asks me back. I hope it is helpful to future teachers for their future students that they look at us as having abilities not disabilities.

I also went to the Crouse Nursing program at the Marley building. I presented to future nurses. I talked to them about Down Syndrome and Gigi’s Playhouse and what it means to have the baby and how important it is to give them current information so they don’t tell new parents incorrect facts. I told them it is not a sad diagnosis and I am proof of that! It is nice that they can see how far a sick baby (like I was) can progress, so they can see the whole picture and not make any assumptions. I gave them information on the Playhouse so parents have a place they can make contacts with people going through the same things.

September was a very busy month I had a couple of Special Olympic events going on. September 20th was Bocce competition. Our Bocce club went to the Toccolano Club in Rome New York. Two teams came in second place, my team and another team came in Third place, and one of the teams came in 1st place. We had fun!

A week ago I had a softball competition and played two teams we lost both games but got a 3rd place medal. I had a lot of fun. It is exciting to win, but I was so tired that week, I was so busy.

The day before competition we went to the Turning Stone casino to see Kathleen Madigan, a comic who is very funny. I can’t remember the name of the guy who opened up for her but he was very good also. I like hanging out with my parents and going to cool places like that. It was my first time to a real, comedy club. We had dinner at a place there, The Tin Rooster and we gambled a little afterward, luckily I did come home with some of my money.

The day after competition was the Buddy Walk and I was working with my mom that day and helping her with the raffles and getting my mom set up and running. I was there early, 7:30 am. I helped her out a lot before and at the start of the walk. Gigi’s Playhouse was also there, set up near the raffle tent. I was working a double shift because I worked over there for a little while also. I love the Buddy Walk seeing over 2,000 people there supporting all of us with Down syndrome. It makes me happy, but I was tired, it was a long day.

I have been taking classes at LeMoyne college. I am in a Sociology course and it has been going pretty well, so far a 90 average, cool right. I feel very happy and excited about that and hope I can get an A in the class whoo hoo.

Speaking of Down Syndrome, October is National Down Syndrome Awareness Month, it is to celebrate the awareness and advocacy of Down Syndrome. I hope everyday that I create awareness of the things all of us with Down Syndrome are capable of. I hope someday we won’t have to have an Awareness and Advocacy month, that it will be a given, but for now I will do everything I can to help get to that point.

October is looking to be a busy month as well. I have about 5 Presentations and I will take my second road test, so stop back and see how I did and wish me luck!

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Future teachers

Today I went to a school in Fulton, NY to do a presentation to future teachers. The class was made up of future teachers that will be student teaching next semester at the elementary school we were in. I tell them how I learned best while in school and to never underestimate my and the abilities of those of us that are differently-abled. I took some questions about education, and my accomplishments. I took a picture with them. I like speaking to groups like that and hope that I make a difference to how they teach or treat someone differently abled. It was a small group of about 20 to 25 people.

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Motorcycle Ride

Today, my friend from church Jack Sheean came to my house and took me for a nice long motorcycle ride we were out for a couple of hours. I had an awesome time with the wind whipping in my face sometimes cold and sometimes warm. I went through Jamesville, Weedsport, Skaneateles, and Auburn. He took me out to lunch, we went to Quaker Steak and Lube, it was very good. I love riding with him, it is always fun. This was my second ride of the year and I love every bit. Thanks very much Jack I had a blast!

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Gigi’s Playhouse

As you know I work at Gigi’s Playhouse, as the Assistant Site Coordinator and I used to share an office with Angela, she is the new Site Director of the Playhouse, so welcome Angela. I enjoy working with her and we have been making some changes. One of the new changes we made together, was me getting my own office, I am right next door to her so we have been collaborating and working well together. I love my new space, it is very comfortable and roomy. I now feel more indepedent and I like it a lot.

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Casowasco

This Sunday I am going to camp for a couple of days I will be doing a bunch of activities like going in the water, in a boat, bible reading and hanging out with friends, I will be doing some creative activities as well. I am looking forward to spending time with my friends and making new friends. I leave Sunday by 4 and come back on Wednesday in the afternoon. I am planning on having a good time with camp fires, singing and everything. I look forward to it every year.

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Brody’s Buddy Ride

This morning, was a very early start, 5 in the morning and had to be to Utica by 7 in the morning.I kicked off the Bike Run, I spoke around 7:15 ish. I encouraged and supported them as they left to ride their bikes for 63 miles. Why 63 miles you ask? People with Down Syndrome have an extra chromosome on the 21st, and a 3rd copy of that so you multiply the two for the miles they had to bike for. I had a good time speaking and it was a blast.

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Another semester at LeMoyne College

Wow does the time go so fast. I am almost getting ready for school again. In two weeks I am going to take a Sociology class. I am looking forward to the upcoming semester. I hope the teacher I am going to have is going to be as supportive as my other teacher from last semester. I hope that I can do as well as I did last time. Wish me luck everyone. It’s pretty cool taking classes at LeMoyne.

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Breanna Stewart

I went to the Special Olympics at CNS this year and Breanna Stewart was the keynote speaker like I have been in the past. I got to meet her and hang out with her. I like meeting new people and she is really cool, just recently we have been emailing each other and catching each other up our summers. She told me that she is going back to school soon and she said to let her know if I want to see her play basketball. She is on the Women’s UCONN Huskies team. How cool is that, I am definitely looking forward to seeing her play sometime.

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The ABLE act continues

This morning Senator Chuck Schumer was speaking about the ABLE act in Syracuse. It was held at ARC of Onondaga at 11 am. I was there as a Down Syndrome self advocate, NDSS ambassador, and also representing Gigi’s Playhouse.I stood up next to the Senator while he spoke about the ABLE act and how it will benefit my friends and I to keep money into our checking accounts, and not have to worry about exceeding certain amounts of money. I took my picture with the Senator and a couple of friends Laurie, Rob Taishoff, and Amy Allyn, took pictures with them as well. I had a interview with the Channel 9 news crew that went well and made the news this evening they actually followed me over to Gigi’s where I was working and filmed me there. I enjoyed seeing Senator Schumer, he feels confident the bill should be pass later this year. I hope so.

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ABLE act

This morning was an early start to my day, by getting up at 4 am. I had a plane to catch at 5:30 and me and my Mom went to Washington DC. I am a self advocate so I went to the hearing of the ABLE act. We got there early so we took the Metro station and took two of those going there and two coming back. When we got to the Dirksen building my mom and I just hung out for a little bit. Then went up to the room with where the hearing was going to start. The hearing took about an hour or so, the room was filled almost to capcity. There were at least three self advocates who told their personal stories and their testimonies. The voting is not going to happen right away but I think the vote will be in September. I thought the speakers were good and well spoken. We had to wait in a line to get in the room. After the hearing was over me and my Mom hung out a little more and headed back to the airport and got lunch at Legal Seafood and it was pretty good. We caught the flight we wanted and got back home to Syracuse safe and sound. It was really interesting going through the process of the hearing. I hope to go back when they sign it into a law!

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