ABLE act

This morning was an early start to my day, by getting up at 4 am. I had a plane to catch at 5:30 and me and my Mom went to Washington DC. I am a self advocate so I went to the hearing of the ABLE act. We got there early so we took the Metro station and took two of those going there and two coming back. When we got to the Dirksen building my mom and I just hung out for a little bit. Then went up to the room with where the hearing was going to start. The hearing took about an hour or so, the room was filled almost to capcity. There were at least three self advocates who told their personal stories and their testimonies. The voting is not going to happen right away but I think the vote will be in September. I thought the speakers were good and well spoken. We had to wait in a line to get in the room. After the hearing was over me and my Mom hung out a little more and headed back to the airport and got lunch at Legal Seafood and it was pretty good. We caught the flight we wanted and got back home to Syracuse safe and sound. It was really interesting going through the process of the hearing. I hope to go back when they sign it into a law!

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Syracuse Chief’s Baseball Game

Tonight, I went to the baseball game with my parents, my Aunt and Uncle and Godmother, I sat with both of them. I met John Katko, he is running for Congress, he is so nice and personable. I went over introduced myself and talked to him. I wished him good luck in his run for Congress. At one point of the game they were throwing shirts and I got one from him, he motioned for me to move up toward him and then he tossed it to me. I put on the shirt and John came to me and I took a picture with him. That was so awesome. I hugged him wow! Tonight was an awesome night and not only did I meet him, I also met the manager of the stadium. Lottery was up on top selling tickets, I won a shirt from them and then I won money on lottery tickets, woo hoo. The Chief’s won the game and then they had the fireworks. It was so much fun.

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ABLE act

The ABLE act is Acheving a Better Life Experience so people like me and my friends that are differently abled can have money in our accounts, and not lose our insurance or Social Security. Without that we remain at poverty level. There are pictures on facebook about passing this act. I wrote a letter to President Obama about the ABLE act. I wrote him last week and I would love to hear back from him. I am looking forward to hearing from the President. HELP US PASS THE ABLE ACT, contact your congressmen and women and Senators and urge them to vote for it!

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Packing up

Today is Sunday, wow did that time go by fast. We had to finish packing and get ready to come home. So after getting dressed we finished our packing and we went down to breakfast for the last time. After breakfast we went back up and brushed teeth and pulled our luggage out to the halls for the bus to come and pick us up. When we got in the bus it was a little bit until we got back. We got back about 11 something and said our good byes to friends. We then parted ways and went home. That was pretty much it, but it was a great weekend. now nap time!

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Competing Day

Today was early for me and my friends. It was six in the morning. We had to move and get ready for breakfast after the coaches woke us up. We got dressed and did our medicines and brushed our teeth. We had to make sure we had everything with us. I think we did. After breakfast we took a bus to the track and field meet. The coaches had a meeting, then at 8 I had prelims for softball throw and did okay. I went back in the afternoon and got my ribbon I came 4th place. I had a running heat a little bit after the softball throw. That was also prelims. My time was 12.9 not to bad. We all went to lunch at Olympic Village and walked around there. I partook in the healthy athlete events when they were still up and running. In the afternoon I had my final running heat and my time was 12. 1 I think and came in 4th place. Central region came in 4th place for the relay. After we were done, back to the bus and headed back to the dorms at that time, It was time for dinner yay. Then after dinner we got to relax for a little while and shower. The shower felt great after being outside in the sun. After getting showered we had closing ceremonies and a victory dance. Stayed there and danced for awhile. When coach told us it was time to head back we got ready for bed and started packing up. We hung out in the hall for a bit and ate some snacks, because that was our last night being at Buffalo. Then went bed and it was close to midnight.

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Going to Buffalo

Today, my friends from Special Olympics, my Mom (also one of my coaches took a bus to go to state games in Buffalo, NY. We were packed and ready to go. When we got to the Special Olympic office, we left and got there about 3 something. We had to get keys and roommates. Then we kicked back for awhile. We got ready later for dinner. Three of us were gluten free and the nice people in Buffalo provided really good gluten free food. After dinner we took a bus over to opening ceremonies. They had public speakers, karate demo and music. By this time it was getting late and took the bus back to the dorms. We went to bed early due to a early morning start.

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Utica

On Thursday I went to Mohawk Community College. A professor from there has been emailing me about speaking to her class. So me and my parents and Aunt Julie went to Utica, it took about an hour or so. I spoke to a small class about my abilities and bullying. I did not get a lot of questions but I enjoyed speaking to the class. Heather (the professor) asked me to come back to another class she has. It is an undergraduate class at SUNY Cortland. I agreed to it. I got a thank you note and a gas card. Very thoughtful. I had a good time speaking to her class.

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Syracuse again

Today was our last day in Florida, my parents and I made the most of the day. We went down to the beach for an hour or so. Then made our way to the pool for the last half an hour. We headed back to the condo to shower up, eat lunch, finish packing our luggage and back on the road again. The ride to Orlando took about 2 hours or so, we did stop for dinner at Macaroni Grill. Then after dinner, we brought the car back to the rental dealer. Took a shuttle over to the airport. We had confirmed seats on JetBlue that my Mom bought for us. The flight was about 2 and a half hours. When we got back into the Cuse, we got our luggage, got the car and went to pick up our puppy. We went home and crashed and burned. We were so tired,and still are from everything. Just have to unpack and that is pretty much it. It was a great relaxing vacation and I was sorry to see it end. One thing if we had been there one day longer we would have gone to Fort Myers to support the Gigi’s fundraiser they were having yesterday but we couldn’t because we were flying out, bummed!

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Relaxing

Today was fun, me and my parents went to the pool. Did that for most of the day, it looked dark kind of like rain. So we did that and read books and got our tan on. We went out kind of late. Me and Mom went bathing suit shopping and didn’t find exactly what she was looking for, and Dad went golfing. Then we came back and did the pool. In another hour or so we came back to the condo to hang out for awhile. Took some naps then went out to dinner, we went to the Dolphin Bar. It was pretty tasty. I bought dinner. We all decided to go to the mall and shopped for suits again. This time the mall closed at 9, mom and I almost got locked in Dillards, they didn’t know we were still in the dressing room, oops! We hurried and got something. We all left pretty quickly. Then back at the condo. Did nothing.

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Take me out to the Ballgame

Today, was a fun day, this morning it looked like rain, but it held out. We just heard thunder then it cleared up and we had sun so me and my parents went down to the beach to hang out, read and be in the water. The water had some waves but not as rough as yesterday thankfully. Stayed there for awhile and then we headed to the pool to hang out for a little bit. I had to shower up there I was sandy like crazy but eventually I got cleaned up. After the pool me, Mom and Dad came back to the condo to clean up and have some lunch, and do our own thing for a little while. We left a while later and went to a baseball game the St. Lucie Mets against Brevard County Manatees. The Manatees won darn it. I got a picture with the mascot Klutz. That was fun. Went out for a quick Mexican dinner and now back at the condo and ready to call it a night.

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