Friday the 28th of April was a semi formal dance that my boyfriend and I attended. I had a friend of mine Jenna come to my house and do my hair and make up beforehand. She did an awesome job and I loved what she did for me. I wore a new fustia dress from Macy’s that was perfect. My parents and I went to his place to pick him up, before we left he gave me a beautiful corsage and we took lots of pictures. Mike and I went out for dinner before the dance, we went to Hullar’s located in Fayetteville. We had a wonderful meal and great conversation. We asked for our tab but when we did we were informed by our waitress that another customer saw us dressed up and ready to go out, that he had picked up our bill and paid it forward. We were definitely surprised and we expressed our gratitude. The next day I wrote a letter to the editor and unknown to me so Mike’s parents. Emily Derrenbacher saw it on Syracuse Post Standard and tagged on me on Facebook, seeing that we did that. Today I read it in the newspaper. Early this morning, Congressman John Katko texted me and said he loved my letter to the editor and I rock. It was definitely a kick start to a great day. I will pay it forward for sure!
My parents and I were asked as guests to the NDSS gala Thursday night March 30th. We just drove up early in the morning and got in without any problems 4 hours later. My mom and dad were going online and found out where Law and Order SVU were shooting and filming so as a surprise to me they went and found where it was. My mom asked the guy guarding the door of a restaurant that had the windows covered up if any of actors were there. He said Ice T and Peter Scaravino were in there, he said it depended on how well they did there lines as far as how long before they came out. They came out a few minutes later. I got to get my pictures taken with them. They are super nice and were definitely willing to take pics with me. OMG that was so awesome ! I loved every minute of it. WOW!
That night was the gala so we found our hotel room and checked in, we got to hang out and do whatever for a while and then it was time to get ready. Monique who has been doing my hair and makeup for the last 5 years, came up with her photgrapher, she did an updo and makeup to match my dress and made me so fancy. We got to the gala at Gotham Hall they had a red carpet because the theme was Hollywood. I didn’t realize it but my dress matched the theme. Get this one I got to sit with two princesses from Saudi Arabia that were being honored and the president of NDSS Sara Weir. I went up on stage with Sara because I had to speak with her to a huge crowd. I spoke about the text to donate. I also got back on stage later that night with Amy Allyn to help to introduce the band The Mere Mortals, that rocked the After dance party. I danced the night away. I danced with my mom and my dad. I had a huge blast and definitely fun. I even got tons of comments on my dress and how pretty it was and that I did a good job speaking. I had a ball.
I had a great time on my vacation. My parents and I went to one part of Florida for a day or two and hung out by the pool and got a tan. On Saturday we traveled to Satellite beach. Got to the condo, on the way we went to the Mets game where I was able to get a hat as my own souvenir. My aunt Nancy stayed a few nights. We did go by the pool and read books and got a tan, of course I got a sunburn. Ouch! We didn’t even do the beach by the condo the water was rough but we did when we stayed at the hotel. My parents, Aunt Nancy and I did go the pool and just hung out. We did get to play board games. We had breakfast and lunch at the condo but did go out to dinner each night. We got pedicures one night. We also made it to play mini golf the day before we left. We all watched Syracuse play basketball at Duffy’s. This is really cool I was talking to the hostess and it ended up that she used to live in Cicero and she was a counselor at this program called New Visions at OCC that I used to go to and she knew a lot of the same people I know. It was pretty awesome talking to her, we got a nice a pic together. I felt really relaxed on this trip and definitely worth it.
I was asked to speak at Oswego College at Liverpool High school today. It was a classroom of teachers learning more about how to include and teach all students. It was for Professor Bobbi Schnorr,I have spoken to her class a couple of times before. I speak about my experiences and my abilities and those of my friends that are Differently Abled. I showed my slideshow and I took questions from the classmates and Professor Schnorr. I enjoy speaking in front of her class and enjoy all the questions that they ask. I got to tell them about my experiences in school and how I learned best, then I updated them on all of the things that I have done recently. I really enjoy going to her class and Professor Fenlon’s.
I went to school with Anthony Donofrio a high school friend of mine. My mom went to school with his mom what a coincidence right? Well I was at Modern Malt eating lunch one day and Anthony and I were talking, he had me stand up at the hostess stand, then he asked me if I wanted to work there. He is the executive chef there. I talked to my family and filled out the required paperwork and I started my new job at Modern Malt. My schedule is Monday Thursday and Friday 11 till 3 but Thursday I have school, so I start my job an half an hour later. I seat people, and am a greeter. Just the other day I started to clean the tables. I really enjoy my job. I get paid every Thursday and I make tips. How awesome is that! I am liking my job. I look forward to working there.
I received an email that I responded to, it was a casting call for someone having Down Syndrome being a spokesperson. They liked what I said in the email so they asked me to send a short video. My Mom and I went to the library and it took a few takes to get it done but we shot a video about me and my job and what I do. My mom sent it in. She got a response saying How Wonderful! I am now waiting to hear back from the casting director who has to talk to her clients before she can email us the results of who gets to go further. It’s for TNT, how awesome is that !! I hope it’s me.
Last week I went to Poughkeepsie for winter state games in floor hockey. We had to go early for a congress meeting that lasted awhile. I was able to head back and met up with everyone back at the hotel. That night we had Opening Ceremonies, where we got to walk in after waiting at the freezing ice rink. When we sat down we had goodie bags under our seats. We listened to speeches and saw entertainment. Called it a early night. Saturday was competition day. We played a qualifying game and won that. The two games we played we lost. Our first game was 13 to 1 and our second was 7 to 10. Coming in 3rd place with a bronze medal. That night was closing ceremonies and the dance. Danced the night away, back to the hotel to call it night.
It’s time for family vacation. I am heading off to the beach, sun, warmth and to get a tan. I plan to swim in the water, take a dip in the pool and cool down. I am excited to see Aunt Nancy she lives in Sebastian Florida which I believe is a half an hour from where we are staying. Mom got a condo for us and our airfare. We stay for a week. I am looking forward to kicking back on the beach relaxing. I hope putt putt golf is in order while we are there.
My parents and I have been asked to be at guests at the National Down Syndrome Society’s gala at the end of March . When we found out that we were going, my Mom and I went to Boom Babies and started dress shopping. Mom and I tried on many dresses. I went through many dresses before I finally made a descision on what dress I wanted. It ended up being the very first dress I had slipped on. The dress is spectacular black and gold with a hint of silver. My mom is wearing navy. I am looking forward to seeing Myss Monique again. She has done my hair and makeup ever since I met her 5 years ago where I got hooked up through a mutual friend. I really love her, and love the way she styles me. I feel like a super star after she is done with me.
Today was sort of an early morning, I had floor hockey competition at Saint John’s Fisher in Rochester. We got there around 10:30 this morning. It was an all day event with a pairing game at 12:15 which we lost. Then we were able to eat lunch before our first game. We played both games and lost both of those games. Bringing home 4th place ribbons. One of our family friends came out to watch us, Camille Pensebee, she held a big head of mine while she was cheering I was super happy that she was able to make it out to watch me compete. While we played one of our games I was trying to get the puck out of my net I couldn’t move and yelled help me I am stuck in the net. That was a LOL moment big time. When we were done we all packed up and headed back home.